Take Action
Join ACLD in advocating for children and adults with autism, learning and developmental disabilities. Together we can fight harmful budget cuts and service transformations that may impact how we fulfill our mission.
Contacts for Advocacy on OPWDD Cuts:
New York State Governor Kathy Hochul:
(518) 474-8390
https://www.governor.ny.gov/content/governor-contact-form
New York State Comptroller
Tom DiNapoli
contactus@osc.ny.gov
NYS Senate Majority Leader:
Andrea Stewart-Cousins:
https://www.nysenate.gov/registration/nojs/form/start/message-senator?senator=4518551
New York State Assembly Majority Leader:
Speaker: Carl E. Heastie
518-453-3791
Speaker@nyassembly.gov
NYS Senate Finance Committee:
Liz Krueger, Chair
https://www.nysenate.gov/senators/liz-krueger/message
Majority Leader:
Crystal D. Peoples – Stokes
518-455-5005
PeopleC@nyassembly.gov
Ways & Means Committee:
Chair: Helen E. Weinstein
518-455-5462
WeinstH@nyassembly.gov
OPWDD Commissioner
Dr. Theodore Kastner
866-946-9733
info@opwdd.ny.gov
Find Your New York State Senator:
https://www.nysenate.gov/find-my-senator
Find Your New York Assembly Member:
https://nyassembly.gov/mem/search/
February 9, 2020
Join the New York Disabilities Advocates’ “Virtual Advocacy Rally” this Thursday February 11th at 1:15 pm! Click the Zoom link below. This Virtual Rally brings together provider agencies, those receiving services, families and advocates to urge State Legislators and the Governor to make people with disabilities a priority! #SaveIDDServices #SaveOurServices
Join Zoom Meeting: https://zoom.us/j/95931054430?pwd=aFcvbisvd2lVTjNSS3g5MzdCUjV5UT09
Meeting ID: 959 3105 4430
Passcode: NYDA1
November 25, 2020
“SAVE OUR SERVICES”
Virtual Statewide Rally via ZOOM
Wednesday, December 9th at 11 am
NYC FAIR & L.I.A.N.D.D.*,
NYC Developmental Disabilities (DD) Councils [Brooklyn, Bronx, Manhattan, Queens, and Staten Island], ENYDDA, & NYADD
The Governor & the Legislators need to hear from us about the effect of their cuts.
Advocate!
BE SEEN! BE HEARD!
#SaveIDDServices!
Click Here to Know the Facts on the Cuts
Tell your story:
Send pictures of your family members, of the messages on your cars, and of the posters for a montage that will be shown during the RALLY!
Send to info@nycfair.org. We will share with the Governor and Legislators.
Participating Legislators & Speakers TBA soon
Virtual Rally is Tuesday, December 9th at 11 am
ZOOM MEETING ACCESS
Join:https://us02web.zoom.us/j/84507001387?pwd=RVlDRytnRTFNNkhVLzZ0VllaaGpjdz09
Meeting ID: 819 8581 4195
Passcode: 477149
One tap mobile: +19292056099,,81985814195#,,,,,,0#,,477149# US (New York)
For more information, contact info@nycfair.org or visit www.nycfamilyadvocacyinformationresource.org
Click Here to Download and Share PDF
*NYC Family Advocacy Information Resource & LI Advocacy Network for the Developmentally Disabled
November 13, 2020
“SAVE OUR SERVICES” Rally Cancelled
Due to the rise in COVID incidence, the Drive-in Rally on November 17th has been cancelled. A statewide virtual rally is being planned with legislators, self-advocates, and family members to address funding cuts to OPWDD and related issues. Details to follow.
Please check the NYC FAIR website for more information in the coming days at www.nycfamilyadvocacyinformationresource.org
Thanks for your support!
September 24, 2020
Phone Rally to fight OPWDD cuts – call your representative today!
Join ACLD and agencies across New York State today in a Phone Rally to fight OPWDD residential program cuts!
These cuts will jeopardize the stability of housing programs for agencies like ACLD, which are already dealing with significant financial losses from this pandemic. If these cuts go into effect:
- Over $200 million will be taken from our loved ones with I/DD every year
- Reimbursement will be reduced by as much as 7.5% for certain residential programs with significant vacancies, including vacancies due to deaths from COVID-19
- The occupancy adjustment resulting from vacancies will be eliminated
- Reimbursement will be slashed by 50% for retainer days when residents are in the hospital or are taking “Therapeutic Leave Days” for family visits
- Finally, after cutting reimbursement by 50% for leave days, the cuts will also impose an annual “cap” of 96 “Therapeutic Leave Days”, after which reimbursement would be reduced to zero
The first cut to “Therapeutic Leave Days” is planned to go into effect next week on October 1st.
Please join in the Phone Rally today and share your story and how “Therapeutic Leave” cuts will personally affect you and your loved ones.
Phone numbers of top NYS officials
Andrew Cuomo, Governor
(518) 474-8390
Carle Heastie, Speaker of the Assembly
Albany: (518) 455-3791
District Office: (718) 654-6539
Andrea Stewart-Cousins, Senate Temporary President and Majority Leader
Albany: (518) 455-2585
District Office: (914) 423-4031
William Barclay, Assembly Minority Leader
Albany: (518) 455-3751
District Office: (315) 598-5185
Robert Ortt, Senate Minority Leader
Albany: (518) 455-2024
District Office: (716) 434-0680
June 6, 2020
Help fight DRASTIC cuts in OPWDD Funding before July 1st!
On May 27, 2020, the Department of Health published a public notice proposing cuts in reimbursement for IRA and ICF residential programs which would:
- Take about $200 million every year from our loved ones with I/DD
- Reduce reimbursement by as much as 7.5% for certain residential programs with significant vacancies, including vacancies due to deaths from COVID-19
- Eliminate the occupancy adjustment resulting from vacancies
- Slash reimbursement by 50% for retainer days when residents are in the hospital or are taking therapeutic leave days for family visits
- Finally, after cutting reimbursement by 50% for leave days, the proposal also would impose an annual “cap” of 96 days of therapeutic leave days, after which reimbursement would be reduced to zero.
Dear _____________________,
I am a (parent/family member/supporter) of a non-profit voluntary agency that provides vital programs and services for adults and children with autism, intellectual and developmental disabilities. I am writing to express my vehement opposition to proposed and reckless budget cuts of $238 million (annualized) OPWDD is advancing, which will have significant impact on providers of residential programs who have been on the frontlines of caring for people during this pandemic.
Providers like ACLD have been left to finance the cost of the emergency on their own, without any financial support from the State to meet the increased costs of responding to the impact of the crisis. OPWDD provider agencies have already incurred significant hardships due to the this COVID-19 public health emergency; from challenges with access to testing, staffing vacancies due to illness and family obligations, and PPE shortages. Providers have not been reimbursed for any of these additional expenses, despite Federal funding provided to the State for this very purpose, and are now faced with an unimaginable cut.
These proposed cuts will severely limit funding for individuals simply because they require hospitalizations due to medical or psychiatric illness, or choose to take a therapeutic leave to spend time with family members. Further, the rationale used for these cuts are invalid as costs for direct care staffing are unaffected and would not be reduced due to one resident of a multi-person IRA being out of the house.
The State’s proposal to cut funding when residents visit family members will act as a disincentive for community integration goals fundamental to the HCBS waiver. This proposed policy would also undermine the Legislature’s intent to support the workforce of this critical sector in New York’s system of Medicaid supports and services. It will in fact, directly offset the rate enhancements previously provided by the NYS Legislature in 2019. These enhancements approved in the 2019 State budget for direct care staff in voluntary-run residential programs will be wiped out by these cuts.
It is deeply disturbing that in the recently adopted State budget for 2021-2022 FY, State-run residential programs received a 5.5% increase in spending while voluntary-run programs are now facing a reduction in financial support of almost the same percentage. It would appear the State is cutting funds for voluntary-run programs to finance increases in funding for State-run programs.
Prior to this pandemic, disability providers were already financially struggling and the impact of these proposed vacancy cuts would be approximately $238 million per year. Instead of making cuts New York State should be focused on working towards a slow and steady return to pre-COVID service delivery without jeopardy the precarious financial position of so many voluntary agencies.
This public health crisis is far from over as public health officials anticipate a resurgence this fall and winter. Cutting funding for OPWDD certified residential programs at this time would be devastating for all 35,000 people who resident in these residential programs across the State. I urge you to vote against these reckless cuts.
Sincerely,
If you would like to write your own letter in opposition to the vacancy rate cuts, we have provided some context below for how the proposed cuts would affect service to people with I/DD.
Tips for writing your letter:
• Identify yourself
Say why you are writing and who you are. List your credentials, your relationship to the I/DD field, and state that you are a constituent. It also doesn’t hurt to mention if you voted for or donated to them.
• Personalize
Tell your elected official why this legislation matters to you and the people you know. If you have one, include a personal story that shows how this issue affects you and your family.
• Be emotional and factual
Provide detail without exaggeration about how the vacancy rate cuts would affect you and others.
• Close with a request
Close by requesting the action you want to be taken. Ask that the state do away with cuts to the vacancy rates and find savings elsewhere.
Talking Points
• The proposed vacancy rate cuts in reimbursement for IRA and ICF residential programs would:
• Take about $200 million every year from our loved ones with I/DD.
• The proposed cuts will severely limit funding for individuals simply because they require hospitalization due to medical or psychiatric illness or choose to take a therapeutic leave to spend time with family members.
• Reduce reimbursement by as much as 7.5% for certain residential programs with significant vacancies, including vacancies due to deaths from COVID-19.
• Disproportionately harm individuals with serious medical or psychiatric conditions, as they spend more time away from a residence and therefore create more “empty beds.”
• Drastically cut funding to providers in the wake of the COVID-19 pandemic, after providers were seemingly abandoned to the point of having to purchase their own personal protective equipment.
• Come at a time when voluntary providers are already owed funding from the state. The proposed cuts will directly offset rate enhancements previously provided by the NYS Legislature in 2019. The
• Legislature approved two 2% salary enhancements for direct care and clinical staff working in OPWDD residential programs – one increase to be implemented on January 1, 2020, and the second on April 1, 2020. Neither has been implemented as of this date but remain “under review” with the Division of the Budget.
Adapted from Cerebral Palsy Association of NYS and New York Disability Advocates (NYDA)
May 15, 2020
Act Today!
The House is expected to vote on the HEROES Act today, its latest COVID-19 legislative package which contains significant provisions to help people with intellectual and developmental disabilities (I/DD) and the providers who support them.
Today contact your member of Congress and tell them to vote YES on this legislation because it contains provisions essential to protecting people with I/DD during this pandemic. To find your member of Congress please visit: www.house.gov/representatives/find-your-representative
On Tuesday, House Democrats released the HEROES Act, their proposal for the long-anticipated fourth COVID-19 relief package. This is the opening round in negotiations with the Senate and White House for the fourth package and we anticipate the final package will look different from this proposal. However, the HEROES Act contains provisions that will be enormously helpful to people with I/DD and the Medicaid-funded I/DD services that support them, and will serve as Democrats’ framework for deciding what to support in the final legislation that is taken up by the House and the Senate.
Now is the time to show support for the HEROES Act provisions. The disability support-related provisions in the HEROES Act include:
- A 10 percent increase in the Medicaid match rate (FMAP) specifically for the Home and Community-Based Services (HCBS) program.
- Explicitly defining Direct Support Professionals (DSPs) as essential workers.
- An additional $100 billion for the Public Health and Social Services Emergency Fund, and a specific provision to list HCBS providers among the entities eligible for the funding.
- A “Heroes Fund,” which would fund hazard pay for DSPs up to $13 per hour in addition to current wages.
The House is expected to vote on this bill on Friday, so time is of the essence. Thank you.
Adapted from ANCHOR (American Network of Community Options & Resources)